So, ever since I was diagnosed with muscular dystrophy over 20 years ago, I've experienced changes in my body, which I believe are caused by the atrophy and weakness of my muscles.
For example: in April 2018, I felt a shooting and searing sensation in my calves. The sensation was unfamiliar to me, and while it was irritating, I assumed it would quickly pass.
However, I did not improve as time went by. On the contrary, my primary care physician diagnosed me with 'neuropathy,' for which he prescribed Gabapentin. Neuropathy is a nerve damage disorder induced by a variety of factors; one of which is muscular dystrophy.
To this date, three and a half years later. That burning pain I first thought to be temporary, has accompanied me every single moment. My skin has become extremely sensitive to the point, that sometimes, I am sure parts of my skin are about to tear up. Especially the parts that touch a surface like my buttocks when I have been sitting for over two or more hours or when I have been in bed too long without being turned to change position.
But when my caregiver or loved one checks my skin, they can not see any skin damage. "Must be the nerves" they say.
I really don't know what to do, but the pain I feel is agonizing.
