Tuesday, April 27, 2021

AN UNFAIR CHALLENGE

 22 years ago, a perfect stranger approached me with a challenge of life or death.  At first, I did not pay attention and treated it like a hindrance. But, it would not go away. Finally, I gave in and asked: "Alright, I will consider accepting your challenge but first,  I need to know what is your purpose, what is your goal, and what is your name? "

"My name is Muscular Dystrophy," the stranger said. "My purpose is to weaken you in order to achieve my goal to destroy you." 

I lower my head and close my eyes to concentrate on what I was going to reply when I heard the ticking of a clock.  At the same time, MD was screaming: "OK the timer is set. On your line, get set, go!!!!!!!!!!"

"Wait a minute MD! This is not fair. Something is wrong, I had not yet accepted your challenge, I was just thinking about it." 

MD did not hear because it was already far ahead.

Friday, April 23, 2021

22 YEARS AFTER BEING DIAGNOSED WITH MUSCULAR DYSTROPHY

 To this date, I have been living with muscular dystrophy for over 22 years. 

The first 5 years, despite the difficulties I kept encountering, I thought my problem was not insurmountable. That appreciation of my situation, though, led me to make wrong decisions about my future. For example: When my husband and I discussed my 'retirement plan' we chose  I would not apply for disability benefits.  Fast-forwarding to today, I have to say that I would reconsider that decision.

 Muscular Dystrophy is unstoppable. Its goal is to destroy. Plus, is very expensive to maintain. MONEY, every single penny that you can get, will count. Being disabled is a luxury many can not afford. 

UPDATING THE ADVANCEMENT OF MUSCULAR DYSTROPHY IN MY BODY -END OF OUR GEORGIA HONEYMOON.

My husband and I began searching for our dream home right after selling our Miami house. We were looking to invest the profits from that sal...