Given the above, anyone who experiences difficulty in changing positions should seek help to do so as soon as possible in order to prevent further damage. In a future post, I promise to talk more about the hideous sores. Right now, I would be very grateful to those persons immobilized due to muscular dystrophy or any other sickness, that share with me and my readers their experience regarding their search for a good mattress on which to get a good night's sleep.
The desire to write this blog stems from the thought that sharing my encounters will prompt others to leave their comments or tell their own experiences and that by sharing our struggles we could find solutions.I firmly believe that it is important to lay bare the challenges a degenerative illness brings to those affected —as well as to their families.
Monday, January 18, 2021
I THOUGHT I HAD FINALLY FOUND THE BEST MATTRESS. BUT NO, NOT BY FAR!
On February 19, 2020, I published an extensive post narrating my many attempts to find a mattress that would allow me, and consequently, my caregiver (who is my husband), a decent night's sleep. At that time, I thought I had finally found the "magic mattress", but time told me "No, not exactly!"
It happens, that the Invacare microAIR MA90Z Lateral Rotation Low Air Loss Mattress System
for which I paid over three thousand dollars did not perform well. It gave me the sensation of being ditch in a hole; which is a pretty bad sensation.
After trying to set the mattress air pump in every possible configuration to avoid the problem, my husband decided to call the company from which we bought the mattress. They put my husband in contact with the manufacturer. The manufacturer sent us a new pump. The first weeks it seems as if we had succeeded in solving the problem; the mattress inflated enough to not ditch me into a hole. Unfortunately, though, gradually it has gone back to doing its old bad habit: Sinking me!
My husband thinks I should buy another lateral movement mattress system, but I am coming to the conclusion that there is no such system that provides significant help to the patient.
This is a true pity because now I am scared when it's time to go to sleep. As a person who has suffered from Muscular Dystrophy for over 22 years, I am
at the point of not being able to move. I can't even move the tiniest bit to
turn to my side. This, of course, inhibits me to change my position. This situation
is exasperating and also very dangerous because 'staying put' causes
pressure points. The pressure points, if left unattended for periods of time, (meaning not
changing the patient's position) originate the terrible sores so feared by
patients and caregivers. The sores are a
result of the loss of blood flow due to lack of circulation which causes the skin to die and decay. The sores gotten in bed are known as pressure ulcers, decubitus ulcers, or simply 'bedsores'.
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UPDATING THE ADVANCEMENT OF MUSCULAR DYSTROPHY IN MY BODY -END OF OUR GEORGIA HONEYMOON.
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