To this date, I have been living with muscular dystrophy for over 22 years.
The first 5 years, despite the difficulties I kept encountering, I thought my problem was not insurmountable. That appreciation of my situation, though, led me to make wrong decisions about my future. For example: When my husband and I discussed my 'retirement plan' we chose I would not apply for disability benefits. Fast-forwarding to today, I have to say that I would reconsider that decision.
Muscular Dystrophy is unstoppable. Its goal is to destroy. Plus, is very expensive to maintain. MONEY, every single penny that you can get, will count. Being disabled is a luxury many can not afford.
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