Sunday, July 28, 2019

GETTING ACQUAINTED WITH MUSCULAR DYSTROPHY


After being diagnosed with MD, good luck accompanied me for some time. I kept living my life almost as normally. I kept the two jobs I had.
My limp though became heavier. Frequently I had to cut short the walks that my husband and I used to take in our neighborhood; eventually not being able to take them anymore. Same thing when it came to doing exercise or even slow dancing, I got tired quickly.  Also, I had to spare high heels; I could no longer manage to wear them. And I had acquired a gait.
Some 3 years after being diagnosed with Miyoshi Myopathy, my doctor thought I would benefit by using a mobility aid device and gave me a prescription for a rollator.  When I got it I was very happy because using it gave me a sense of security.
One thing is worth mentioning: Little time after my doctor prescribed me the walker, my husband and I discovered that the use of a walker or even the fact that you have been prescribed one, might prevent you from getting Long Term Care Insurance.  So I wanted to point that out to my readers.
After getting the walker rollator I applied for a disabled person parking permit.
Slowly but surely I was being aware of what Muscular Dystrophy could do to a person's life and the changes were not fun; I imagine that people who are forced to navigate a mine field would understand what I mean.

ARTICLES YOU MIGHT LIKE TO READ:

http://www.aaltci.org/long-term-care-insurance/learning-center/are-you-even-insurable.phplongtermcare.gov/medicare-medicaid-more/medicare/

https://www.dmv.org/disabled-drivers.php

https://www.webmd.com/pain-management/handicap-parking

LOOKING BACK:

No one knows the level of incapacity one will get, therefore, I advise to plan the future with a realistic perspective for it is better to be over prepared than not.

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